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Please note: Rosacea 101 is a comprehensive, 373 page book, covering the conventional and alternative treatments for rosacea and covers basic rosacea 101 knowledge for rosacea newbies. It is a must have book for those who need in one book what they need to know about rosacea. I list the IRF as a 'non profit' organization (even though there is no evidence that it is a legally registered non profit) in my book on page 73, briefly mentioning it along with the other known non profit organizations that have any dealings with rosacea. Below is my comments on the IRF:

International Rosacea Foundation -
The Mystery

For some time there has been a mystery as to who the International Rosacea Foundation is. The IRF still says on its home page:

"The International Rosacea Foundation is a non-profit organization whose primary mission is to make available easy readable rosacea symptom and rosacea treatment information on one web site..." source

As of August 2008, there is still no information on the web site who is running this foundation or who is behind it. There is no 'About Us' page or information page explaining who the IRF is.

Here is the story of this mystery.

Michael Smith, Director of the International Rosacea Foundation in an email dated February 19, 2003 asked me to link to the IRF site.

I then checked it out and it is a comprehensive web site of information on rosacea and follows many of the basic categories as my commercial web site, but has a much more comprehensive list on the ingredients of rosacean non-prescription treatments. More important to me is the following statement in the LIFESTYLE RECOMMENDATIONS page:

"...Stimulants such as... excessive sugar from sweets and soda are vascular dilators and should be avoided. Sodas (soft drinks, pop) containing aspartame and or NutraSweet cause excessive redness in approximately 30% of rosacea sufferers and should be avoided....Rosacea redness is partially caused by high calorie carbohydrates (pastas, breads) and sugar spiking from all sweet foods...."

Finally a 'rosacea organization' has confirmed what I have been saying about sugar and rosacea since 1999.

I asked Mr. Smith what the policy of his organization is on spending and about the IRF agenda and so far have never gotten any response. The web site provides no names of directors, no contact information, no address, and only an email that sometimes bounces back to you. I have sent at least a half dozen emails to the IRF and have had no response whatsoever.

The owner of internationalrosaceafoundation.org according to a whois lookup on register.com in 2004 was:

International Rosacea Foundation
44 Columbia St
Cambridge, MA 01139
phone 616 642-5048
Registrant Name: Andrew Fore
email: web@tresolini.org

Since February 2003 I have tried to find an address and phone number and what state this organization is registered in and it took Warren Stuart from the rosaceagroup.org to discover that the Better Business Bureau listed it with Bass & Boney and was notified of this in November 2004. There was evidence that the organization was listed by the BBB as a commercial website owned by Bass & Boney, Inc. However, as of 2008 this information is no longer in the BBB database. However, Mr. Ralph Bass is the president of Bass & Boney, Inc. and a member of the Better Business Bureau which listed in 2004 that the International Rosacea Foundation along with Rosacea LTD-III and his other ventures.

I do appreciate all the detailed information on non prescription products for rosacea and salute the IRF for all this research on what ingedients are in these products. However, my thought is that the IRF should post who is behind this organization.


 
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